Advocacy Appointment Has Special Meaning for Peter DeNardis
Peter L. DeNardis, adjunct instructor in information sciences and technology (IST) at Penn State Beaver, has been elected to serve a three-year term on the Board of Trustees for the International Waldenstrom’s Macroglobulinemia Foundation (IWMF). The Board appointment is especially meaningful to DeNardis because he was diagnosed with Waldenstrom’s Macroglobulinemia (WM) five years ago at the age of 43. WM is a rare, slow-growing form of Non-Hodgkins Lymphoma, sometimes known as lymphoplasmacytic lymphoma.
DeNardis was a full-time instructor at Penn State Beaver from 2000 to 2006. Upon receiving the diagnosis, Peter joined the IWMF where he’s active in a variety of roles, including that of discussion list manager with software hosted by Penn State. He is also co-manager of the WM Patient Database Project in which Beaver campus IST student interns and graduates have been heavily involved. In addition, he’ll soon be chairing the IWMF Web Site Committee to lead the revision of the group’s current website at http://www.iwmf.com/.
About 1,500 new cases of WM occur annually in the United States with the incidence being higher in men than women in the white population rather than African-Americans. Incidence increases sharply with age. The median age at diagnosis is 63 years of age. Recent medical advances have extended the median survival time to 11 years from date of diagnosis.
The IWMF is a non-profit, all-volunteer organization dedicated to providing information, resources, a communication network, and experience on how to live with WM, plus encouragement to those affected by this rare and incurable blood cancer. The organization is financed solely by patients and their friends and families, with funds being utilized for patient support and for vital research into finding a cure for the disease. Members include patients, caregivers, and health professionals from around the world. Trustees meet periodically throughout the year to manage the business of the organization and direct activities toward patient support and research.